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THCB Gang Live Episode 38

Episode 38 of “The THCB Gang” was live-streamed on Thursday, Jan 14. You can see it below!

Matthew Holt (@boltyboy) was joined by regulars: medical historian Mike Magee @drmikemagee, policy & tech expert Vince Kuraitis (@VinceKuraitis), Consumer advocate & CTO of Carium Health, Lygeia Ricciardi (@Lygeia), Suntra Modern Recovery CEO JL Neptune (@JeanLucNeptune) WTF Health host Jessica DaMassa (@jessdamassa) &  fierce patient activist Casey Quinlan (@MightyCasey).

We did indeed touch on that mob riot in the Capitol. We discussed the impeachment, the inauguration, and virtual JPMorgan AND virtual CES and talked about reparations and reconciliation–and how that might influence the whole world of telehealth and primary care. This conversation was wide ranging and fascinating!

If you’d rather listen, the audio is preserved as a weekly podcast available on our iTunes & Spotify channels

THCB Gang Episode 31 11/5

Episode 30 of “The THCB Gang” was live-streamed on Thursday, November 5th. Watch it below!

Matthew Holt (@boltyboy) was joined by regulars, CEO of Day Health Strategies Rosemarie Day (@Rosemarie_Day1), medical historian & health economist Mike Magee MD (@drmikemagee), fierce patient activist Casey Quinlan (@MightyCasey), writer Kim Bellard (@kimbbellard), and patient & entrepreneur Robin Farmanfarmaian (@Robinff3). The conversation revolved around the underlying value structures in America, what a Republican Senate looks like for the ACA, and how will the (at the time likely but not certain) Democratic Administration change the narrative around health policy.

If you’d rather listen to the episode, the audio is preserved as a weekly podcast available on our iTunes & Spotify channels — Zoya Khan

THCB Gang, Episode 13

Episode 13 of “The THCB Gang” was on Thursday, June 11th. Watch it below or on our YouTube Channel.

Matthew Holt (@boltyboy)was back on the moderating chair! Joining him were patient advocate Grace Cordovano (@GraceCordovano), patient safety expert Michael Millenson (MLMillenson), policy expert Vince Kuraitis (@VinceKuraitis), MD & hospital system exec Raj Aggarwal (@docaggarwal), data privacy expert Deven McGraw (@healthprivacy) and fierce journalist & data rights activist Casey Quinlan (@MightyCasey). This was a doozy, and the conversation ranged from what it’s like re-opening at a big academic medical center to data flow and public health in Taiwan to statues of Confederate losers in Richmond. Not to mention what will happen in the impeding second wave.

If you’d rather listen, the “audio only” version is preserved as a weekly podcast available on our iTunes & Spotify channels — Zoya Khan

Americans Are Worried About the Cost of Their Healthcare (and they have good reason)

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By CASEY QUINLAN, HELEN HASKELL, BILL ADAMS, JOHN JAMES, ROBERT R. SCULLY, and POPPY ARFORD

Last year, the Patient Council of the Right Care Alliance conducted a survey in which over 1,000 Americans answered questions about what worried them most about their healthcare. We asked questions about access to care, concerns about misdiagnosis, and risks of treatment, which we reported on in our last THCB piece about the What Worries You Most survey.

We also asked people to rank their concerns about the costs of their care, in five questions that covered cost of care, cost of prescription drugs, cost and availability of insurance, and surprise billing. In the time since we ran the survey, everything has changed in American healthcare. The COVID19 pandemic is filling emergency rooms wherever the epidemic arrives. Bills are likely to be high, for both patients and insurers, and it is still far from clear how they will be paid. Americans are likely to continue to worry deeply about healthcare costs, with good reason, since it’s only in America that someone can go bankrupt due to seeking medical care.

Continue reading…

Come to the Society for Participatory Medicine conference (Boston, Oct 17)

Join me at the 2nd annual Society for Participatory Medicine (SPM) conference, co-located with the Connected Health Conference at the World Trade Center in Boston. It’s magical and very inexpensive–Matthew Holt

DEMOCRATIZING HEALTH CARE!
Me. You. Us. Healthocracy.
Don’t hesitate another minute! Avoid severe FOMO (fear of missing out) and regrets by registering for the second annual SPM conference!

Hear from amazing speakers Patti Brennan, Rasu Shrestha, Bill Marder, Sarah Krüg, Ivan Handler, Casey Quinlan, Jason Bobe, Brennen Hodge, as well as mother/daughter heroes, Angela & Grace Kennedy, and Kristina & Kate Sheridan. Help create a Participatory Medicine Manifesto in the afternoon. Patients Included!

Spotlight on Casey Quinlan, Mighty Casey Media

Casey’s work in standup comedy, network news and health policy will entertain, enlighten and inform. After a cancer diagnosis 5 years ago, Casey wrote Cancer for Christmas: Making the Most of a Daunting Gift and produces the Podcast Healthcare Is HILARIOUS. Her favorite people to work with are those who want to fix the system, not serve the status quo.

Learn more about all of the speakers here.

Learn more about the conference or register today (seating is limited).

CONFERENCE DETAILS:
Wednesday, October 17, 2018 (7:30 am – 5:00 pm)
Seaport World Trade Center, Boston, MA
$100 for SPM Members ($150 for non-members)

Why I Tattooed My Health Data Over My Heart | WTF Health with Casey Quinlan

By JESSICA DAMASSA

WTF Health – ‘What’s the Future’ Health? is a new interview series about the future of the health industry and how we love to hate WTF is wrong with it right now. Can’t get enough? Check out more interviews at www.wtf.health. 

How can patients help usher in a better future for healthcare? Start speaking up. LOUDLY.

In this WTF Health interview, meet one of health’s most outspoken patient advocates, Twitter voices (@mightycasey) and podcasters, Casey Quinlan of Mighty Casey Media, who talks about her patient journey as a cancer survivor — and why the awful experience led her to tattoo a QR code linking to her electronic medical record to her chest.

Casey’s ‘physical political protest’ is tied to her passionate views about the lack of data liquidity in healthcare and how patients suffer as a result. She’s launching a new “If-You’re-Selling-My-Health-Data-Cut-Me-In” Movement and weighs in on why more patients aren’t clamoring after their health data to push real change in the healthcare system.

Filmed at Health Datapalooza in Washington DC, April 2018.